Saturday, June 25, 2005

Dan is home and much better

Dan had a good day, some friends came by and played cards, his spirits are high and He is feeling better. Friday July 29th will be an all day affair at the hospital for transplant evaluation at another hospital.

Sunday, June 19, 2005

Dan in Hospital again

Dan had a critical situation this last week. Sunday Dan wasn't feeling so great so Karen checked him into St. Paul's emergency hospital.

He was not eating, running a slight fever, couldn't breathe easily, had pneumonia, and generally rundown. Tuesday the 14th his pulminary (lung) functions were down to 12% capacity, where just a week ago he was at 19%.

He was not doing or feeling well at all. So the family sat around the hospital encouraging him to health. Of course the doctors were pumping him full of antibiotics and we were just the cheerleaders.

I am happy to say that he is sitting up, looking better, acting perkier, the pneumonia has quit growing, eating a little more, and is generally feeling better. So another crisis is behind us.

In addition to Dan's double lung transplant, there will be anti-rejection medication that Dan will have to take after the transplant untill, well for the rest of his life. That medication has now escalated to $30,000 per YEAR, and still climbing.

Saturday, June 11, 2005

Not Doing Well

I haven't been here for so long, I forgot my username and password. I had to recover it. Boy do I feel dumb.

I went to a CF clinic this past Tuesday and my condition has gotten somewhat worse than I thought. My doctor authorized a motorized scooter for myself, which he has been against for some time because he wants me on my feet, excersising. Anyway, I measured 16% lung functions again, and I have gained 3 lbs. Today, I am back down another 5 lbs, due to struggling to breathe and sweating in the process. I move very slowly, literally at a snails pace. I can barely prepare myself anything to eat or drink, I have to ask the wife or the kids to help.

My wife has ordered me to do nothing, but rest and try to recoupe. That is exactly what I am trying to do. I have some pain in my chest, not sure what it's from though. I also have some pain on my left side, just below the last rib. Hurts like hell when I take in a deep breath.

I am on oxygen 24/7 now, when I go out, if at all, I go in a wheelchair. My scooter will take some time to arrive. It's way to hot and humid for me to go out. I'm getting dehydrated pretty fast. Explains the weight loss.

My appetite is very poor. I was only able to get down one teriyaki chicken rice bowl and a can of spagghetti-O's all day today. Yes, I need to eat more, I'm just having a time coughing up 5 oz of gunk, gasping for breath at the same time and trying to get up and eat something. Moving around while I gasp and cough almost makes me want to pass out. I think I've done 10 lung treatments today, I usually only have to do 3 or 4. Gives a little more insight on what I'm dealing with.

The doctor also wants me to refile my insurance papers at the transplant center to look at my financial situation again. The government has changed alot of things with Medicare and Medicaid as well as the organ distribution program in the DFW area.

Things are starting to roll again with the transplant again, I hope I can survive long enough to have the darn thing. At the rate that I have been going in the past, I surely would not have.

I'm Done.